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SMA Survey

BioNews Services frequently launches surveys to help bolster understanding about the rare diseases its readers endure on a daily basis. The information you provide is valuable to others in your community and to those who treat and care for people with these rare diseases.




The purpose of this survey is to gather insights from individuals who suffer from Spinal Muscular Atrophy.


How long?

This survey takes approximately 10 minutes to complete.


Are there any benefits to my participation?


There may not be any immediate personal benefit to you. However, the voice of the patient-level information is oftentimes difficult for the broader research community to access. Your participation and perspectives are valuable to a better understanding of the SMA community and the unique challenges faced by patients and caregivers


Who can answer my questions?

If you have questions about the survey or have experienced a survey-related problem, please send an e-mail to the following address:

[email protected]

Please click the link below for full consent form:




There are 37 questions in this survey.